In order to reach its mission statements, IAPRD not only develops educational activities such as symposia and congresses (including the World Congress of Parkinsonism and Related Disorders), but also promotes publications. So, the IAPRD publishes its official journal, Parkinsonism & Related Disorders, as well as textbooks. To optimally channel communication between the research and clinical communities, in order to promote optimal diagnosis and treatment for Parkinson's disease and other movement disorders, Parkinsonism & Related Disorders is supplied free of charge to all IAPRD members, and listed Books can be ordered at reduced prices via the Amsterdam - Free University Press.
Both associate and full members are given a free subscription of the official journal 'Parkinsonism & Related Disorders'. Members are exempt from paying an annual membership fee, though are due to pay administration costs (70,00 Euro/biannual) when not participating to the biannual World Congresses (the participation of which includes this postal handling costs for the first two consecutive years). They are also given a discount on IAPRD-developed books and are entitled to attend the congresses, symposia and other activities organised by the Association.
Click here for online access to the journal.
Parkinsonism & Related Disorders publishes the results of basic and clinical research contributing to the understanding, diagnosis and treatment of all neurodegenerative syndromes in which Parkinsonism, Essential Tremor or related movement disorders may be a feature.
The journal will form a truly international channel of communication between the research and clinical communities.
This easy-to-use app is designed to be used by patients and exercise therapists dealing with Parkinson's Disease and other forms of Parkinsonism as a source of advice and instructions for daily exercises and movements. The app contains over 50 high quality video and text instructions.
The advice and exercises have been compiled by expert researchers and therapists in the field and are divided into a number of functional domains that can cause problems in the daily life of Parkinson's patients. Both scientific evidence and practical experience are making it increasingly clear that specific exercises and advice can support/provide for improvements in the following domains: walking, posture, changing body position (rising from a chair, turning in bed etc.), balance, keeping the body flexible and relaxed, and overall physical condition.
The IAPRD and IPSEN Pharmaceuticals have been so kind to support the app development.
In my 40-year career, I have had a number of outstanding mentors who sparked my interest in neurology and movement disorders and I will always be grateful to them for inspiring me and for providing guidance, especially in my early development. Selecting the right mentor is one of the most important decisions a young physician or scientist can make. A mentor should not be a “tormentor”, but rather someone who is not only a cheerleader, but also a person of integrity and stature who provides constructive feedback, promotes a positive attitude, and forces the mentee to be creative and to anticipate future trends and needs.
One of the most important traits for a researcher or clinician to develop and cultivate is open-mindedness, a continuous curiosity about all that crosses your path. Your patients will certainly profit from this virtue, but you will profit even more. Curiosity has been a rich source of inspiration for me during my entire career. When I look back on my (happily still continuing) own life as a clinical neurologist, since the early seventies, a huge variety of open questions crossed my path, including uncertainties about how to adequately treat patients (for instance, preventing neurosyphilis in latent syphilitic patients) to understanding empirical treatments (for instance, the effects of corticosteroids in myasthenia gravis patients). I then became fascinated by the challenges in movement disorders, inspired by the etiopathophysiology and treatment of the dopaminomimetic psychosis, as well as the non-motor symptoms, especially hyposmia. After my retirement, I have found time to indulge myself into the (still promising) role of autologous stem cells in the quest to bring down the debilitating manifestations of traumatic, vascular and idiopathic neurodegenerative disorders. Indeed, it was my interest in translational neurologic disorders which made my life, and I sincerely hope and wish that all of you will have the same experiences, and will enjoy daily practising our great profession as movement disorder specialists.
I was taught by two of my mentors, C. Miller Fisher and Ichiji Tasaki, not to believe anything unless I saw it for myself. This has been very good advice. Good to read the textbooks, but don’t fully accept what is written until you see it for yourself. This is certainly also useful in research where, as has been emphasized recently, many research results are not reproducible. And it is valuable advice when seeing patients. Several times I have seen patients where the diagnosis had been given some years before and then accepted without question by subsequent physicians. A look with a fresh eye might well reveal a different diagnosis. Of course, this can be due to evolution of the disorder, but sometimes the first physician was wrong.
When I started my career nearly 45 years ago, in our diagnostic armamentarium we only had spinal tap, EEG (6 channels), analog EMG, plain skull and spine X rays, carotid angiography done through direct carotid artery dye injection, and echoencephalography and pneumoencephalpgraphy (who can still remember these last two tests?). I recall the enthusiasm and amazement we had for the first small and hazy head CT pictures! During my professional career, neurology has developed into an amazing specialty that is able to offer patients not only precise diagnoses, but also individualized therapies. For example, the basic science discoveries in immunology and molecular genetics have already been implemented on translational basis. The future of neurology is very bright. I am positive that young physicians and scientists who choose neurology now will not be disappointed!
I think in this age of ever-increasing corporate regimentation of health care delivery, in which time allowed with patients has decreased and clerical duties have increased, my advice to those clinicians younger than I (which means just about everyone) is to never lose sight of the patients. Listen to them. Look at them (not just at your computer). Rushing through an examination can (and will) lead to missed information and observations. Many a research idea has had its genesis in an observation made during a clinic visit. But beyond the science, rushing through clinic visits deprives us of the opportunity – actually the joy – of getting to really know our patients. Some of my most memorable moments from my years of practice derive from such interactions – attending a University of Nebraska vs. University of Oregon football game in Eugene (my red Nebraska shirt stood out starkly from the sea of green and yellow Duck fans) with one of my patients (unfortunately Nebraska lost – badly - as my Oregonian patient gleefully reminded me); attending a get-together of the Nebraska Young Onset Parkinson’s Disease group at the home of one of my patients on the Platte River right where the Sandhill Crane migration takes place; having patients from Nebraska insist on coming to Memphis, Tennessee for their appointments after I moved there – and bringing kolaches with them since they knew I have an affinity for them; receiving perceived (and very tongue-in-cheek) necessary educational books from patients (specifically “Fear and Loathing in Las Vegas”); and many more. Those are memories that cannot be replaced or forgotten, memories that make a career more than just a job.